Full on, in yer face – Jude

What a fun day…not.

Jude has two activities at the moment, sleeping or screaming. Sometimes he even screams in his sleep. I really had forgotten just how badly this drug hits him.

I took him up to the hospital today for his ACTH injection, he screamed all the way there, he screamed all the time he was there, he screamed all the way home. Then he slept, but only if he was clamped onto me in some way. I spent the whole afternoon lying on the floor with him sleeping on my tummy. Guess what he did if I tried to move him…..

He is currently lying on Rachel’s tummy in the other room and they are both sleeping and I’m not disturbing them.

Jude Marrey - ever so slightly irritable

Jude Marrey - ever so slightly irritable

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2 thoughts on “Full on, in yer face – Jude

  1. Sorry this is hitting so hard for you all again we hold onto the pictures of little Jude in happier times in our hearts, thank you for making time to send Jude’s birthday message to the twins they send big kisses back. I hope to catch up with you all in person next weekend until then big hugs to you all. lots of love Kirsty & the Powell Boys xxxx

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