Good day

Over 24 hours now since Jude last ‘misbehaved’.  The gastrostomy site which oozed so much nastiness last time is clean, dry and painless and from a surgical point of view he’s free to be discharged.

…but, today was meant to be when he started ACTH and that hasn’t happened and we are still waiting for a decision on that.

Quite happy to have survived.

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