That’s What Friends Are For

Last night was our first night home, yipeeeeeeee we all cried, but coming home has the huge pressure of responsibility and when you have had all drugs feeds and care done for you in hospital the thought of managing it all again is very daunting (even though you’ve been doing it and managing it for an age).

I was doing really well happy to be home waiting for Joe to return, then I split 200ml of milk, I should have taken that as a sign.

The pump then started to play up AGAIN, and things went downhill from there. Now you will understand the title of this post…….. A friend, wonder what the dictionaries description says, anyhow my definition: someone who drops everything, drives up to Russells Hall Hospital to collect a borrowed pump from the children’s ward, brings it round, sorts me out and makes me a cup of tea πŸ™‚

Thank you Su x


4 thoughts on “That’s What Friends Are For

  1. Friends on this journey make all the difference.So glad you had one ready,willing and able.The feeds will get easier.I promise.Just time and practice.Zoey has the “Mickey button”,I am assuming that is what they are hoping to replace the PEG with.Will be better and hope that can happen without much fanfare.So sorry Jude has had such a hard go of it.Hardly seems fair.Enjoy each other over these days home and will be thinking of you when you head back in for more of the “stuff”.Praying for you across the pond.

    Until next time,Heather and Zoey

  2. Even very special people like you need a hand to hold. I hope you will get to find some quality time for you on the 8th, I know it will be another difficult week for the Marrey family. Wishing you a Happy Birthday Rach, sending you big and little kisses & lots of hugs xxxxxxxxxxxxxxx

  3. thankyou rach, made me cry- we would all do so much more if we could you know. I think maybe most of us feel helpless many times a week and would love to make life better for you all.

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