Nathan is in the school play this week, Mr Bumble in Oliver – and a fine performance he gave last night too.
So that me and Rachel could attend opening night, our friends Pete and Su offered to do some ‘baby sitting’ shifts.
Not long after I got home Pete sent us this picture…..
……with the message “Just before he vomited on me!”.
They started Jude on a high dose of ACTH this time due to his age and size and so far no ill effects. His blood pressure has risen slightly but nothing of concern and as long as the next couple of days go well he will be able to go home at the end of the week.
We were asked to keep a seizure diary, something we have never done voluntarily. Having to keep jotting down the time, type of seizure and how long it lasted reminded me why we don’t do it. A page of A4 paper was full inside 4 hours. Hopefully the ACTH will bring about an improvement.
Nathan and Joe have the chance to do some summer activities with the Young Carers group they have recently got involved in. There’s a trip to Ironbridge, a holiday on a farm and a barge weekend.
Joe, I know you will be reading this at some point. STAY ON THE BOAT, DO NOT LEAN OVER THE SIDE AND DO NOT JUMP IN THE WATER. 🙂