Since the last post we have received a date for Jude’s fundoplication. Initially we were given 13th April (thank God it wasn’t a Friday) anyhow there was one of the surgeons who was unable to assist on that day, so now it’s going to be Monday 19th. The intensive care bed has been booked (just in case) and it all seems to be going ahead.
As of tomorrow Jude will be on 1ml of epelim twice a day, his seizures are getting quite large now I just hope we can last another week before the introduction of topirimate.
On a lighter note we (me and Ray) did our cake sale. When we arrived at church to set up the cakes just kept on arriving. In the end we had three trellace tables, we honestly thought we’d never sell them. But we did and made a whopping £200.00 with more sponsorship pledges made. I would like to thank everyone who so kindly made cakes and to everyone who bought them. Although, I really didn’t want to see another cup cake for a long time as I had baked about 50 or so of them they day before together with about 40 bread plaits.
Jude has been awake since God knows when and he’s still fighting sleep, now in my space in my bed and I’m getting cold 😦 sleep Jude, sleeeeeep.