The little man has been doing really well recently. We’ve got on top of his repeated chest infections with a combination of suction, inhalers and physio and with winter drawing to a close hopefully we’re past the riskiest stage.
At his review meeting last week he had Carbamazepine added to his medication regime and his Ketogenic diet was tweaked a little. He’s also been referred for Vagus Nerve Stimulation surgery which is an interesting development. I think we’ve both come to terms with the likelihood that we will never get completely on top of Jude’s seizures but the possible benefits of VNS are that they will be less in frequency and severity – that alone is probably enough to make it worth trying.