When Jude was first diagnosed and throughout those first few years this blog was my place to come and dump our story, his story. It was really meant for friends and family so I didn’t have to say the same things over and over – when Jude was going through something this was the place to find out what was going on and how he was.
Then facebook took over and Jude’s many and varied troubles subsided and coming here became less and less frequent and, to be honest, less important.
Jude is in Nottingham tonight, some 70 miles from home (my American friends will think that is just around the corner). Tomorrow he has an operation called a Selective Dorsal Rhisotomy – it should be fairly straight forward and we are optimistic that it will benefit him and us. This operation was only available privately – in the UK we are used to our medical treatment being free at the point of delivery (paid for by our taxes, nothing is really free….except for love). Finding out how much it really costs opens your eyes – but it also created another wave of support for Jude and over the past few months we have been inundated with offers of help to the point that we raised the money and set in motion a plan to raise more in his name (more details on that at a later date).
With that in mind I wanted to come back to this blog and record my thanks in this place, the place where Jude’s story first took on a life of it’s own. I am not going to name check everyone (not least because I don’t know everyone) but this is my thanks to everyone who;
Sang, laughed, ran, walked, swam, ate, joked, gave, cooked, made, worked, played, bought, came, danced, helped, smiled, cried, organised, sold, talked, shared, loved, did all those things, some of those things and some other things I have forgotten.