Little Dude

Well he hasn’t been that well, had a chest infection and was getting better then on Saturday relapsed and became quite ill again. It’s been a hard week, but he’s finally turned the corner and has had a whole day without oxygen, has been out with me, had a shower and is fast asleep with SATS of 95 and NO oxygen ๐Ÿ™‚



Happy Easter

Well Happy Easter everyone. Beautiful sunny day with a lovely family meal. Jude is doing well and is off to Acorns Children’s Hospice (or as I call it his 5* Hotel) on Wednesday for a few days ๐Ÿ™‚


Hi everyone

Well I thought it was about time for an update. Jude is doing really well at school. We had parents evening a week ago and school say how we’ll he is progressing and how happy he is. Has to be said he doesn’t like the mornings when he’s snuggled up in bed !

Our friend Chris Powell is doing a walk in June 70 miles in 24 hours!!!!!! Very brave. Chris is raising money for Acorns. More details will follow.

Slightly closer is the London Marathon … A few years ago one of Jude’s godparents – Rachel Murray competed the marathon raising over ยฃ2,000.00 for Brainwave. This year her fiancรฉ Rich Mitchell is taking up the challenge , again raising money for Brainwave. The link to Rich’s just giving page is:
just-giving link

If you can spare any money it would be greatly appreciated.



My Mother’s Day card from Jude ๐Ÿ™‚